From the heart-melanoma

Recently diagnosed with Stage 3 melanoma, I need this place to come and sound off at.

Thursday, August 31, 2006

Hello I'm back

Ok so I haven't been here for a while. It's not like I don't need to come here or I'm so busy or happy I've not needed to come. I've been UP and DOWN big time.When I'm up I've had loads to say but filled my little world right up with stuff to do. When I've been down I've also had lots to say but it's all very depressing.
I keep rotating between severe bad moods when I have so much anger brewing in me I feel like a teenager. It's a horrid feeling. RRRAAGGHH!!!! Honestly haven't felt like that for a long time. HATE IT!!!! And then I have the whole uplifting feeling of euphoria. God I'm glad to be alive, want to get fit, enjoy life, make the most etc...
Gonna go again now, got so much to say but not tonight, not after I've had a bottle of wine. oooh am I naughty? Are cancer patients allowed a bottle of wine or is that asking for it? XXX

Wednesday, August 09, 2006

Cracked up and moving on...

It was inevitable. I had a stonking row with Duane last night. He came to bed asked me if I wanted to talk, he said I wasn't myself and something was up. I replied with the usual 'nothing' a few times but it wasn't washing so started to try and explain that things had changed for me, priorities etc. I wanted to say I didn't get the impression he felt the same and life for him seemed to have gone back to normal but as soon as I mentioned priorities he jumped in 'this is all about me going to the pub after work' I said no but in a way that was confirming my worries. I don't understand why he doesn't want to come home from work and be with me and the girls. Same argument I mentioned before. He said he needs some release of stress seeing as he's given up everything else (I got the impression he feels he's done that for me) and started on about I've given him no support with giving stuff up. I don't think thats true, another argument - asked him if there was anything else he was pissed off about to which he replied 'the whole job lot'. That started me crying, he got pissed off I was crying and shouted more (usual) I tried to go back to what I was trying to say in the first place, that all I was wanting to do was tell him how I was feeling, not argue. I told him I was feeling down. He basically told me to pull myself together he doesn't accept that my prognosis is 50/50 thinks I have a much better chance than that and I'm being too pessimistic.
I'm not too sure where it went from there but it got very nasty, cold and basically exactly what I really didn't need. I cracked, went outside to get away. Felt bloody awful, cried my eyes out which is probably exactly what I needed. Bollocks to Duane making me feel guilty for being low. Why shouldn't I? Surely I'm allowed a couple of bad days with all thats happened? Went back to bed after about 20 mins. Still bloody argued. Wanted to come here and express my feelings at all the insensitive nasty words he was throwing at me. Ended up just shutting it all out whilst the tears rolled down my cheeks. He fell asleep and after maybe an hour of silent crying, I did too.

I Woke up with a feeling of release. Ok my relationship is pretty much obliterated but thats nothing new, but somehow, despite the swollen eyes, I felt better. Must've done some good all the crying. Duane went off to work and I went to St Georges to the Plastics Dressing clinic to get the wound from my groin dissection checked. My Dad took me up there whilst Duane's sister looked after the girls.

Had a really good chat with my Dad on the way there which we don't get the chance of often. Talked about the melanoma thing first, I explained what I knew about the vaccine trials I was being offered. We discussed it all realistically and with a sense of humour, confirming to me that I haven't lost the plot and I am actually coping ok, despite a bad few days. We talked about alternative treatments (there are so many you could get bogged down with but some could be worth a try) stress and how to deal with it (Dad has been in hospital recently too, with chest pains that after an angiogram to rule out heart trouble, the dr.s put down to stress) and I told him Duane and I had rowed and we were basically clashing over the whole thing. It's the Mars Venus problem. He said you can try and get each other to understand you're side of it til you're blue in the face but it never works. I know he's right.

At the clinic the nurse removed my dressing and steri-stips. WOOHOO!! I can now have a proper bath for the first time in about 2 months (Yes of course I've been washing everyday but there's nothing like a warm, bubbly bath).

On the way home we stopped for lunch. Can't remember doing that for a very long time (if ever?) just me and Dad, it was nice.

This evening Duane has gone out to a friend's surprise 30th birthday bash. Wouldn't bother me in the slightest that, it's an event. Good reason to go out if you ask me. He asked when he came home from work (he often does ask and I can categorically state I have NEVER said no), I said, in my new found happy mood (well happy with everything but him and I to be blunt), that he can do what he likes, go to the pub daily, drink, smoke stick shit up his nose, he can get on with his life how he likes. Of course he said I'm being silly now, am I? Yes probably, but I have never wanted to make him unhappy and if thats what he wants he can get on with it and I shall get on with my life (part 2). I so wanted to do it hand in hand with him, I'm not half as brave on my own and I can't really foresee we can possibly walk seperate paths on this journey, but for today, I feel better thinking that might work.

As it happens he's just this minute walked in and its pretty obvious he's done all of the above things I told him to get on with and do. I'm not bothered in the slightest, I hope he's had a good time. I do love him and I so wish one day we can learn to relate with one another.

Oh and have I mentioned yet, my girls are bloody amazing. Gorgeous. I love'em to, well, death. (God where does that saying come from?)
I don't suppose I had mentioned it because most of this blog has been me moaning about how shit I feel. Poor old me. Well now I'm starting to get it off my chest, maybe IF there's anybody reading this (and they haven't slit their wrists), maybe I'll start lifting the whole mood, stop moaning and learn to enjoy this new chapter in my life. Because I am lucky I have so much to enjoy.

Tuesday, August 08, 2006

ok today I'm feeling better. Have read a blog by someone at stage 4 and its everything I wanted mine to be.Full of courage and humour. I'll keep trying.
I know the real problem is that Duane and I are not seeing eye to eye. I'm moaning at him for spending so much time at the pub, (something he admittedly did when I was first dx because he couldn't face being at home. He sees me in a bad mood and can't handle it).
His reason for this is he's given up everything else, (we're trying to give up cigarettes) and weed (he used to smoke it every night) and now he needs something for himself. Says he can't come home from work stressed and deal with the kids. He has to go to the pub after work to chill out before coming home. Said he has to have something to enjoy.
He can come home and have a refreshing drink and chill out. Why can't he enjoy me and the kids? I suppose being so miserable as I have been the last few days gives him more excuse not to want to be here.
I see things differently now. There's a real possibility I won't live to see my kids grow up and thats changed things for me. Priorities and life in general. I don't think anything much has changed for Duane. He's said he's optimistic everything will be fine and he can't live with thinking otherwise. So therefore things must still be normal for him. But I can't stand petty arguing, him shouting at the girls, moaning at me that he's running out of clean boxer shorts. HELLO??? Can't you see things like me??? Aren't there more important things in life???
I guess we need to talk. Story of our relationship. We've never been good at communicating that won't change.

Monday, August 07, 2006

I forgot to mention that my CT scan was clear. Thats the best news we've had in a while. Trouble is a lot of people think that means I've got the all clear but unfortunately melanoma doesn't work like that.
I'm at home with the kids its summer holidays. Duane's Mum is here to look after the girls. The last couple of days I've been really down and I can't seem to shake myself out of it. Maybe I'll feel better when I can get out the house. I really wanted to start this blog a few weeks ago. I was feeling really strong and courageous and thought it might be a good thing to share with friends and family to show them how well I'm coping but now I've defeated that objective. I don't want anyone knowing how I feel at the moment. I know they'll say 'pull yourself together' 'be thankful your CT is clear' 'be positive' etc.. and right now I know they're right but I just feel like wallowing for a bit.
I'm scared I won't see my youngest daughter start school, that she won't even remember me. I hate the thought I might not be around to protect my family. I had nightmares when first diagnosed about that, watching one of my girls falling from a cliff but not being able to reach her.
I hate the uncertainty my future now holds. I feel like I'm now to live the last chapter of my life and there's so much pressure to get it right. Do the things I want, be the mother and wife I always aspired to be. I know I can't achieve any of that sulking in bed but it's my safety zone. Give me a few days I'll lighten up :o)

Sunday, August 06, 2006

The last 3 months

This could be very long. I've been wanting to write stuff down for ages but have only just got round to it. (Like those roundtoit plates lol).
In April I had my third baby girl. Jenna . When she was 3 wks old I went to the dr re a mole on my ankle. She was very concerned and referred me to dermatology at the local hospital. 2 wks later I went along on my own (I wasn't expecting anything to happen that day,big mistake) they told me they thought it was likely a malignant melanoma. Shit. They removed it there and then.
I went for the results a week later (with Duane my fiance) and they confirmed it was a nodular malignant melanoma. It was 2.3mm deep. I was to be referred to St Georges hospital in London where they have a great team who would look after me bla bla bla from then on have had great trouble taking anything in.
Went to Royal Surrey to see Associate Specialist Mr Hussein who explained they would do a wide local excision and skin graft plus a sentinel node biopsy. Duane asked if I could die. He said yes it could be fatal. I knew that but I think thats when Duane realised. He gave me a booklet.
Went to St Georges for the operation. Went well but very awkward not being able to move ankle for a while. Came home after 5 days with leg in plaster for a week.
Results came after 3? weeks. Knew it was gonna be bad when they put us in a room and left us there b4 the dr came in. Have learned this is what they do when its serious from previous experience at local hospital.
They found 2 positive nodes of the 3 they removed from my groin. This put me at Stage 3 which they explained was quite a lot more dire than Stage 2 (which I would have been if it hadn't spread to lymph nodes). They said I have roughly 50% chance of surviving 5 years. Met Sylvie a specialist nurse. She's really nice. Talked through telling the children and gave us more leaflets.
Went the next week for a CT scan and pre op.
Following week (30th July) went in for groin dissection to remove all lymph nodes in my groin. I came home after 4 days, much better than the expected 10, which brings me up to now. I have been home for 3 days.
I don't know wether to write about the whole thing in more depth or to start from now. I don't know if I want to share this blog or keep it to myself. But thats the start.